Clinic visit

Today was a LONG clinic visit. They are more than happy with Jack's growth. We all got a chuckle about the comment our pediatrician made about Jack being borderline obese! Ha! Oh well. I think she forgets sometimes she is not dealing with your "normal" child.

Jack has had a lingering cough so he is going to go on Tobi. An oral anitbiotic is the normal route but since Jack's bout with C-diff we try really hard to stay away from them. So 3 weeks of Tobi it is. Not overly excited about this. Jack isn't the best when it comes to nebs!

Today was also the learning day for the Fun Study he is participating in. It was 3 hours of learning about food, measuring food and reading labels. It was a long, long day. Jack was a trooper and was rewarded with a Kit Kat from the flower shop before we left the hospital! The Fun Study measures the growth of CF children. They take into account the height and weight of the parents as well. It goes for 18mos - 2 yrs. Jack is in a couple other sudies too. We all know how vital patient participation is in all of this research. So a few extra hours here and there mean nothing if a cure can be found.

I am also very excited about the news of our very own CF walk in June! It will be so nice not to have to drive an hour to get to a walk. Granted, it won't be at the zoo but now that it's closer to home, more of our friends are more likely to join us.