Ok - I decided to start a blog for Jack. We have a carepage but I try to use it only when he is ill and update when needed when he is healthy.
So let's see, As of right now Jack is healthy. He hasn't had any major illnesses for a year now. Last year at this time he battled C-diff (Chlostridium Difficile)twice. This was a horrible experience. There were times I was not sure he was going to pull through. The stress of being "on-call" for possible surgery and other handful of potential dangers was a lot to handle. Jack was in Rainbow Babies for 3 weeks each time. He was the worst pediatric case they had ever seen. Not something you really strive for.
A little about C-diff. It was be named one of the new super bugs. It is right up there with MRSA. Often times it is picked up in hospitals after a lengthy stay or after surgery. Jack had neither of these so were are not sure where he picked it up. A trip to the supermarket and touching all of the carts could have easily done it.
About Me
- Alma
- My name is Alma. I have 3 children 2 girls and a boy. Jackson my 3 year old and youngest has CF. We found out at birth when he was born with Meconium Ileus. He spent the first 3 weeks of his life in the PICU at the Cleveland Clinic. Thanks to an amazing team of doctors, no surgery was needed for the blockage. Jack has DDF508 defect. Said to be the most deadliest of defects. To date he has been in the hospital 10 times. The last 2 being the worst so far as batled and survivied 2 bouts with C-Diff. I am thankful everyday for our close proximity to such a wonderful hospital such as Rainbow Babies and Children's Hospital.